Supporting people with MND

We’re thrilled to announce that myBreathing has launched this week.  We played a key role in managing this very important project which helps people with MND (motor neurone disease) make decisions about living with a face mask (also known as non-invasive ventilation – NIV).

The site uses video content to describe the key areas such as choosing, starting, and living with NIV. In turn, this allows those people to make an informed decision about whether NIV is right for them.

The driving ambition was to create video and descriptive content that shared the reality of living with MND, giving users access to lots of real-life situations.

A team effort

We worked with our fantastic partners Optical Jukebox (filming and content) and Glass (site development) to produce the website. Our role was to manage the project, provide quality assurance and lead patient and clinician workshops. Working with these groups, the myBreathing team was able to establish key content and themes that will be critical to users.

In addition to this, medical research was produced within the NHS by:

• Sheffield MND Care Centre
• Sheffield Institute for Translational Science (SITraN)
• North West Ventilation Unit
• MND Association

This collaborative co-design approach was key in providing accurate and essential medical advice to users.

We’d also like to say a special mention to Phil, Chris, and James, who were instrumental throughout the co-design and who we sadly lost during the project.

The website is live!

We’re so proud of the website and all the hard work that has gone into this amazing project. The website builds on the success of myTube  and is part of the myMND family of sites, which were developed by the same collaborative team. 

We’re thrilled to say that the website has been nominated in the BMA Patient Information Awards. This is such an honour and we’ve all got our fingers crossed that it will be as successful as myTube was back in 2017!